The Brain Tumour Charity is leading the way in research, support, and advocacy for everyone affect by brain tumours. Our mission is simple but urgent: to accelerate a cure for brain tumours and improve life for everyone affected by this devastating disease.

This role plays a pivotal part in delivering that mission by leading and developing meaningful involvement opportunities for our community. You will lead key involvement programmes such as our Young Ambassadors and Involvement Champions, empowering people affected by brain tumours to share their experiences, influence our work and connect with others. You will build strong, inclusive networks that ensure diverse voices are represented and actively engaged across the organisation. Your work will champion lived experience and ensure involvement remains at the heart of everything we do.

 📍Location: While contracted to our office in Fleet, Hampshire, our team supports a blend of office and home working provided you have adequate broadband and IT capability, with an average of 1-2 days in the office each week.

⏰Working hours: This role is 22.50 hours per week (3 days), with some out of hours working.

💰Benchmarked salary: c.£22,325 (FTE is £37,207)

An experienced involvement professional who thrives in a fast-paced environment and brings strong communication and relationship-building skills. You’ll have a solid track record in managing programmes and delivering high-quality, inclusive involvement opportunities. Confident working with diverse communities, you’ll be passionate about amplifying lived experience and driving impact. Experience of working with young people is highly desirable, along with the ability to support and inspire others to contribute meaningfully and shape our work

 · Lead the delivery of the Young Ambassador Involvement Champion Programmes, including recruitment, onboarding, events, training and ongoing support

· Coordinate and deliver regular meetings, activities and development opportunities for Young Ambassadors and Involvement Champions

· Build trusted relationships with programme participants, ensuring a positive and meaningful experience

· Support the ongoing development and improvement of involvement programmes, using feedback and learning

· Manage research involvement activity, coordinating opportunities for lived experience contributors to support projects

· Deliver workshops, events and co-production activities with a range of stakeholders, including young people

· Provide practical advice and support to colleagues to help embed involvement in their work

· Ensure all involvement activity is accessible and designed to meet to the needs of people affected by brain tumours, including those with cognitive, physical and communication challenges, removing barriers so everyone can participate meaningfully

· Plan and facilitate focus groups using inclusive, trauma-informed approaches to gather meaningful lived experience input

· Design and deliver qualitative surveys that are accessible and engaging, ensuring high-quality responses from a diverse range of participants

· Analyse qualitative data from involvement activities and surveys, identifying key themes and insights to inform service improvement and organisational work

· Proactively identify and address inequalities in involvement, ensuring underrepresented and marginalised groups have equitable opportunities to take part and influence change

· Track activity and contribute to reporting, helping demonstrate the impact and value of involvement

We encourage you to apply to the role even if you do not meet all of the criteria.

Experience:

· At least 2–3 years’ experience in involvement, engagement or community-focused roles

· Experience delivering programmes or projects, including planning, coordination and ongoing improvement

· Experience working directly with service users, volunteers or community members

· Experience facilitating workshops, focus groups or involvement activities

· Experience handling sensitive information and supporting people with empathy

· Experience of qualitative research or insight work (desirable but not essential)

· Experience working with young people or young adults (desirable but not essential)

Knowledge, Skills & Abilities:

· Strong communication skills, with the ability to engage and build trust with a wide range of stakeholders

· Ability to build and maintain positive relationships with volunteers and lived experience contributors

· Good organisational and programme management skills, with the ability to manage competing priorities

· Confidence delivering workshops, events and involvement activities

· Ability to analyse qualitative feedback and identify key themes and insights

· Understanding of involvement, co-production or community engagement principles

· Ability to work collaboratively across teams and influence colleagues

· Problem-solving skills and a proactive, solution-focused approach

· Comfortable using digital tools and platforms to support delivery and engagement

· Awareness of safeguarding, wellbeing and risk in involvement settings

· Understanding of accessibility and inclusion, particularly for people affected by health conditions such as brain tumours

· A commitment to equity, diversity and inclusion

*Please note that the responsibilities listed are not exhaustive and this job description may be subject to change as the role evolves over time.

You’ll be joining a collaborative, bold and innovative team of individuals who put our community first and are connected by a passion to make a real difference. 

🏆Our amazing benefits: 

The Brain Tumour Charity is committed to promoting diversity and inclusion in all aspects of our organisation. We particularly welcome applications from individuals belonging to minority ethnic groups, LGBTQ+ communities, people with disabilities, and other underrepresented communities. 

We strive to create a workplace that celebrates diversity and provides equal opportunities for all candidates and we encourage all individuals to apply even if they don’t meet all the criteria.

Whilst we'd love to have you on board, we want to be upfront as we’d hate to waste your time applying for a role where we can’t take you on. At the moment, we're unable to offer visa sponsorship for any of our positions. We're currently seeking candidates who are already authorised to work in the UK without the need for sponsorship, who can remain on a permanent basis.

Please apply by clicking the red ‘join our team’ button, attaching your CV and a covering letter explaining why you want the role, what you would bring to the team and how your skillset and experience will enable us to make a real impact for those affected by brain tumours. We'd like to encourage you not to use AI to write your cover letter as we want to get to know you, the real you!

We are keen to ensure that our recruitment process is inclusive so if you’d find it beneficial to submit your application in a different format, please drop us a line at people@thebraintumourcharity.org.

Advert close date: 14th June 2026

First interview date and location: 23rd June 2026 over Teams

Second interview date and location: 29th June 2026 at our office in Fleet

The post holder will also; 

• Contribute to achieving the objectives of The Brain Tumour Charity

• Live and breathe our values by being bold, collaborative and innovative, with a community-first approach to everything you do

• Undertake any additional and ad hoc tasks as required 

• Participate in team meetings and other meetings as required 

• Monitor and evaluate activities and provide written reports 

• Represent The Charity at external events in a professional manner 

• Work within an equal opportunities framework 

• Adhere to all The Charity’s policies, procedures and working 

• Ensure all records are held in compliance with GDPR, The Fundraising Regulator Code of Practice and The Brain Tumour Charity policies.

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